Emma's Story
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Welcome to Emma's Story. It all began in June of 2008 when my husband and I found out that our family of four was going to become a family of five. Things took a drastic turn, however, when in September of 2008 our baby girl was diagnosed with anencephaly.
We had people across the world praying for us and for Emma that God would provide us with a miracle and that baby Emma would be born alive and be able to spend just a few moments with us. However, Heavenly Father had a different plan in mind and Emma died during labor and was born in the evening of the 15th of January.
However, we have learned that the true miracle lies in the Atonement of our Savior Jesus Christ and in eternal families.
If you have any questions, comments, stories, or anything else, you can contact us at EmmasStory@gmail.com. Thank you for traveling this journey with us.
We had people across the world praying for us and for Emma that God would provide us with a miracle and that baby Emma would be born alive and be able to spend just a few moments with us. However, Heavenly Father had a different plan in mind and Emma died during labor and was born in the evening of the 15th of January.
However, we have learned that the true miracle lies in the Atonement of our Savior Jesus Christ and in eternal families.
If you have any questions, comments, stories, or anything else, you can contact us at EmmasStory@gmail.com. Thank you for traveling this journey with us.
These People Helped Me Thank You
Emma is Loved
Our Little Emma
What is Anencephaly?
Anencephaly is a defect in the closure of the neural tube during fetal development. The neural tube is a narrow channel that folds and closes between the 3rd and 4th weeks of pregnancy to form the brain and spinal cord of the embryo. Anencephaly occurs when the "cephalic" or head end of the neural tube fails to close, resulting in the absence of a major portion of the brain, skull, and scalp. Infants with this disorder are born without a forebrain (the front part of the brain) and a cerebrum (the thinking and coordinating part of the brain). The remaining brain tissue is often exposed--not covered by bone or skin. A baby born with anencephaly is usually blind, deaf, unconscious, and unable to feel pain. Although some individuals with anencephaly may be born with a rudimentary brain stem, the lack of a functioning cerebrum permanently rules out the possibility of ever gaining consciousness. Reflex actions such as breathing and responses to sound or touch may occur.
Taken from the NINDS Anencephaly Information Page (http://www.ninds.nih.gov/disorders/anencephaly/anencephaly.htm)
Taken from the NINDS Anencephaly Information Page (http://www.ninds.nih.gov/disorders/anencephaly/anencephaly.htm)
Helpful Links
Blog Archive
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2008
(42)
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October
(22)
- Report about the birth and life of babies with ane...
- Emma's Bucket List
- We're Going on a Bear Hunt
- The Scriptures
- Emma's Movements
- Empathy Etiquette
- Angel Watch
- Pregnancy and Infant Loss Remembrance Today
- Ups and Downs
- Angel Garden
- My Little Scare
- Emma's Name
- What Anencephaly Looks Like
- Grrr
- Doctor's Appointment
- Thank You
- Emma
- Today's Update
- Talking With Our Bishop
- Tim's Thoughts
- How We Found Out
- Introduction
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October
(22)
Posts
9 comments:
Emma is such a beautiful name. It is so graceful and lovely.
I agree with Tara. Emma has always been a name to me that represents strength and endurance. Beautiful.
we love it :)
Well I think it's very appropriate that you named your little girl already...YEAH for Emma! What a beautiful name!
What a beautiful idea to name her now. Your sweet little Emma.
Tim and Tiffany, Thank you for telling us. We are aching for the four of you. No one on earth should have to go through something like this. We are so proud that you are doing as well as you are and will pray and fast with you any time you ask. We'll follow this blog religiously. God bless. We miss you.
I love the name. It's a beautiful name, for a sweet little girl.
Emma is a beautiful name, we are so sorry for all that you are going to but know that we are praying for you and the Heavenly Father loves you!
Tim and Tiffany, Our hearts are hurting for you. Thanks for sharing your personal feelings, both of sorrow and faith. You amaze us! We should be comforting you, but you are comforting us. Please know that our prayers will be for you as the weeks go by. We put your names and Emma's in the Boise Temple. There will be many praying for you. What a beautiful name for your little girl!
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