Thanks to Staci for e-mailing me this link. I tried to find it myself, but I couldn't. Here's the link to the story and the news clip for my High 5:
http://www.ksl.com/index.php?nid=148&sid=6415217
I also wanted to give credit to Julie Whiteley for many of the photos. She's given us permission to use them however we'd like, so my sister sent some to KSL 5 and they attributed them all to her.
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Welcome to Emma's Story. It all began in June of 2008 when my husband and I found out that our family of four was going to become a family of five. Things took a drastic turn, however, when in September of 2008 our baby girl was diagnosed with anencephaly.
We had people across the world praying for us and for Emma that God would provide us with a miracle and that baby Emma would be born alive and be able to spend just a few moments with us. However, Heavenly Father had a different plan in mind and Emma died during labor and was born in the evening of the 15th of January.
However, we have learned that the true miracle lies in the Atonement of our Savior Jesus Christ and in eternal families.
If you have any questions, comments, stories, or anything else, you can contact us at EmmasStory@gmail.com. Thank you for traveling this journey with us.
We had people across the world praying for us and for Emma that God would provide us with a miracle and that baby Emma would be born alive and be able to spend just a few moments with us. However, Heavenly Father had a different plan in mind and Emma died during labor and was born in the evening of the 15th of January.
However, we have learned that the true miracle lies in the Atonement of our Savior Jesus Christ and in eternal families.
If you have any questions, comments, stories, or anything else, you can contact us at EmmasStory@gmail.com. Thank you for traveling this journey with us.
These People Helped Me Thank You
Emma is Loved
Our Little Emma
What is Anencephaly?
Anencephaly is a defect in the closure of the neural tube during fetal development. The neural tube is a narrow channel that folds and closes between the 3rd and 4th weeks of pregnancy to form the brain and spinal cord of the embryo. Anencephaly occurs when the "cephalic" or head end of the neural tube fails to close, resulting in the absence of a major portion of the brain, skull, and scalp. Infants with this disorder are born without a forebrain (the front part of the brain) and a cerebrum (the thinking and coordinating part of the brain). The remaining brain tissue is often exposed--not covered by bone or skin. A baby born with anencephaly is usually blind, deaf, unconscious, and unable to feel pain. Although some individuals with anencephaly may be born with a rudimentary brain stem, the lack of a functioning cerebrum permanently rules out the possibility of ever gaining consciousness. Reflex actions such as breathing and responses to sound or touch may occur.
Taken from the NINDS Anencephaly Information Page (http://www.ninds.nih.gov/disorders/anencephaly/anencephaly.htm)
Taken from the NINDS Anencephaly Information Page (http://www.ninds.nih.gov/disorders/anencephaly/anencephaly.htm)
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6 comments:
You are great! What a wonderful tribute to you and your family.
That's so great that they recognized you!! :)
Thats awesome!!! I saw it this morning!! You are an example to many and we thank you. We are praying for your family during this trial!
Congratulations!!!!!! How awesome that is, we hear so much all the time about the bad and it was so great to hear finally about the great things people do. Well, done!!!
Linda
Congrats to you! It was so fun to watch this morning!
I lOVED watching this! You're definitley deserve that "High 5" and probably a hundred more! How great that because of Emma you've been such a positive influence on so many people. Here's my "high 5"!
PS Your boys are so cute playing in the video!
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