I really don't think I can thank you guys enough for the love, the support, the prayers, and everything else that you've shown us over the last while. I know I say it a lot (that I can't thank you guys enough) but that's because it's true. You are all so wonderful.
I also wanted to thank those of you who have e-mailed me and shared with me your stories. The e-mails aren't flooding in, but I have gotten quite a few e-mails from people across the globe who have similar and not so similar stories. I am so grateful for the stories and words that you have shared with me. They have touched my heart and I'm happy to know that Emma's story has touched your hearts as well.
So once again, I say thank you.
And for those who have asked, my High 5 is being aired on KSL5 tomorrow morning at around 6:25 (possibly a few minutes earlier).
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New Here?
Welcome to Emma's Story. It all began in June of 2008 when my husband and I found out that our family of four was going to become a family of five. Things took a drastic turn, however, when in September of 2008 our baby girl was diagnosed with anencephaly.
We had people across the world praying for us and for Emma that God would provide us with a miracle and that baby Emma would be born alive and be able to spend just a few moments with us. However, Heavenly Father had a different plan in mind and Emma died during labor and was born in the evening of the 15th of January.
However, we have learned that the true miracle lies in the Atonement of our Savior Jesus Christ and in eternal families.
If you have any questions, comments, stories, or anything else, you can contact us at EmmasStory@gmail.com. Thank you for traveling this journey with us.
We had people across the world praying for us and for Emma that God would provide us with a miracle and that baby Emma would be born alive and be able to spend just a few moments with us. However, Heavenly Father had a different plan in mind and Emma died during labor and was born in the evening of the 15th of January.
However, we have learned that the true miracle lies in the Atonement of our Savior Jesus Christ and in eternal families.
If you have any questions, comments, stories, or anything else, you can contact us at EmmasStory@gmail.com. Thank you for traveling this journey with us.
These People Helped Me Thank You
Emma is Loved
Our Little Emma
What is Anencephaly?
Anencephaly is a defect in the closure of the neural tube during fetal development. The neural tube is a narrow channel that folds and closes between the 3rd and 4th weeks of pregnancy to form the brain and spinal cord of the embryo. Anencephaly occurs when the "cephalic" or head end of the neural tube fails to close, resulting in the absence of a major portion of the brain, skull, and scalp. Infants with this disorder are born without a forebrain (the front part of the brain) and a cerebrum (the thinking and coordinating part of the brain). The remaining brain tissue is often exposed--not covered by bone or skin. A baby born with anencephaly is usually blind, deaf, unconscious, and unable to feel pain. Although some individuals with anencephaly may be born with a rudimentary brain stem, the lack of a functioning cerebrum permanently rules out the possibility of ever gaining consciousness. Reflex actions such as breathing and responses to sound or touch may occur.
Taken from the NINDS Anencephaly Information Page (http://www.ninds.nih.gov/disorders/anencephaly/anencephaly.htm)
Taken from the NINDS Anencephaly Information Page (http://www.ninds.nih.gov/disorders/anencephaly/anencephaly.htm)
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