I've been thinking a lot lately about what I should do with this blog. As I've said before and as some of you know, I have a private family blog that I've had for many years. I started this blog mainly because I thought it would be too difficult to blog about Emma and about the fun times we were having with our boys right next to each other. However, as time went on, we found great joy in Emma and I didn't feel like it was a weird thing to blog those things together. But at that point, I had already started this blog. Not only that, but this blog had reached across the country and even to various parts of the world and I was very grateful that Emma's story was being shared and appreciated by so many.
Now it's been almost 5 months since Emma has left us. Wow. Sometimes I wish time would stop and the world would remember our sweet little girl. While we shall never forget Emma, the world moves on without her. We now face the awkward question of "how many children do you have?" While I don't like to make others uneasy, I do like to mention Emma because I don't want her to be left behind.
Having said all that, I'm not quite sure what to do with this blog now. I would love to continue to share Emma's story with the world, but Emma's story is the story of our family moving and continuing on in this world and I blog about that in my other blog. I can continue to blog about ups and downs and I can continue to blog about the scrapbooks (because I still need help!) but I'm not sure of what else to blog.
I think for sure I'm going to take some time to get Emma's blog more user friendly. I realized that I've never put the links to all of the other anen mom's blogs up here and I would like to do that. If you're reading this and you are a blogger of a baby with anencephaly, please leave a comment with your blog address. I have them all in my google reader, but it would be so much quicker if the comments were just left. And if not, then I will just go through my google reader and do it. I think I'm also going to put up links to specific posts on the sidebar so that people who come to this page for the first time can get a better idea of some of the thoughts along the way. I'm also going to be publishing this blog into a book (probably through blurb) so that we can have that as part of our memories of Emma.
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New Here?
Welcome to Emma's Story. It all began in June of 2008 when my husband and I found out that our family of four was going to become a family of five. Things took a drastic turn, however, when in September of 2008 our baby girl was diagnosed with anencephaly.
We had people across the world praying for us and for Emma that God would provide us with a miracle and that baby Emma would be born alive and be able to spend just a few moments with us. However, Heavenly Father had a different plan in mind and Emma died during labor and was born in the evening of the 15th of January.
However, we have learned that the true miracle lies in the Atonement of our Savior Jesus Christ and in eternal families.
If you have any questions, comments, stories, or anything else, you can contact us at EmmasStory@gmail.com. Thank you for traveling this journey with us.
We had people across the world praying for us and for Emma that God would provide us with a miracle and that baby Emma would be born alive and be able to spend just a few moments with us. However, Heavenly Father had a different plan in mind and Emma died during labor and was born in the evening of the 15th of January.
However, we have learned that the true miracle lies in the Atonement of our Savior Jesus Christ and in eternal families.
If you have any questions, comments, stories, or anything else, you can contact us at EmmasStory@gmail.com. Thank you for traveling this journey with us.
These People Helped Me Thank You
Emma is Loved
Our Little Emma
What is Anencephaly?
Anencephaly is a defect in the closure of the neural tube during fetal development. The neural tube is a narrow channel that folds and closes between the 3rd and 4th weeks of pregnancy to form the brain and spinal cord of the embryo. Anencephaly occurs when the "cephalic" or head end of the neural tube fails to close, resulting in the absence of a major portion of the brain, skull, and scalp. Infants with this disorder are born without a forebrain (the front part of the brain) and a cerebrum (the thinking and coordinating part of the brain). The remaining brain tissue is often exposed--not covered by bone or skin. A baby born with anencephaly is usually blind, deaf, unconscious, and unable to feel pain. Although some individuals with anencephaly may be born with a rudimentary brain stem, the lack of a functioning cerebrum permanently rules out the possibility of ever gaining consciousness. Reflex actions such as breathing and responses to sound or touch may occur.
Taken from the NINDS Anencephaly Information Page (http://www.ninds.nih.gov/disorders/anencephaly/anencephaly.htm)
Taken from the NINDS Anencephaly Information Page (http://www.ninds.nih.gov/disorders/anencephaly/anencephaly.htm)
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8 comments:
I understand. if you do delete this blog, i wish you the best of luck with the Rest of your pregnancy!! I would love to be able to keep reading about your family! You have truley inspired me!! Take care
Tiffany, I think turning this blog into a book is a wonderful way to remember Emma.
I came across your blog from a friends blog.. I too lost a little baby girl.. 3 years ago in December. You story has touched me in so many ways. thank you for sharing your story and I wish you the best of luck with your pregnancy. and Congratulations. you seem like a really amazing person:)
Logan's blog is
http://loganquinn.blogspot.com
Nicole Mommy to Logan Quinn
That is tough to know what to do with Emma's blog. I would say, though, because you have already blessed and continue to bless so many others through this blog, it would be nice if you could leave it up even if you only occasionally update. Just let us know what you decide! You are a great example of faith to all of us. I can't believe Emma has been gone from us for so long!
Thanks so much for letting me know a little bit more about you and your family. I am the MBASA president for this next year and I am amazed by you already.
Kricket
I fell blessed to have met you and it would have never happened without your blog. I think it is a great gift to Emma to have her story shared. I am sure many of us would love updates even if just every once in a while. I am sure many, like me, have come to love Emma and I would love to hear the rest of her story. As long as you are here I don't think that her story is over.
I found your blog today by 'googling' anencephaly blogs....my sweet baby boy was diagnosed at 12 weeks, and I'm 19 weeks now. I am planning on carrying at least until my boy is old enough to survive and we can meet him :) I am sharing my journey on my life blog, so it's not all about anencephaly, but that definitely consumes a lot of my life these days! I'm glad to find you.
Brooke
www.polkadotsandricrac.blogspot.com
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