Emma moves a lot more now. I would say that she's now moving the same as any other baby might. Last night I thought she was having a dance party!
I enjoy when I have quiet moments to feel her movements. I find that I'm really able to appreciate them. I mean, here is a child, who has severe abnormalities, yet she's still moving. It's amazing to me!
Point of this post? I mostly wanted to document the fact that Emma is moving regularly now (after so long of hardly moving) and to document how much I love to feel her move.
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New Here?
Welcome to Emma's Story. It all began in June of 2008 when my husband and I found out that our family of four was going to become a family of five. Things took a drastic turn, however, when in September of 2008 our baby girl was diagnosed with anencephaly.
We had people across the world praying for us and for Emma that God would provide us with a miracle and that baby Emma would be born alive and be able to spend just a few moments with us. However, Heavenly Father had a different plan in mind and Emma died during labor and was born in the evening of the 15th of January.
However, we have learned that the true miracle lies in the Atonement of our Savior Jesus Christ and in eternal families.
If you have any questions, comments, stories, or anything else, you can contact us at EmmasStory@gmail.com. Thank you for traveling this journey with us.
We had people across the world praying for us and for Emma that God would provide us with a miracle and that baby Emma would be born alive and be able to spend just a few moments with us. However, Heavenly Father had a different plan in mind and Emma died during labor and was born in the evening of the 15th of January.
However, we have learned that the true miracle lies in the Atonement of our Savior Jesus Christ and in eternal families.
If you have any questions, comments, stories, or anything else, you can contact us at EmmasStory@gmail.com. Thank you for traveling this journey with us.
These People Helped Me Thank You
Emma is Loved
Our Little Emma
What is Anencephaly?
Anencephaly is a defect in the closure of the neural tube during fetal development. The neural tube is a narrow channel that folds and closes between the 3rd and 4th weeks of pregnancy to form the brain and spinal cord of the embryo. Anencephaly occurs when the "cephalic" or head end of the neural tube fails to close, resulting in the absence of a major portion of the brain, skull, and scalp. Infants with this disorder are born without a forebrain (the front part of the brain) and a cerebrum (the thinking and coordinating part of the brain). The remaining brain tissue is often exposed--not covered by bone or skin. A baby born with anencephaly is usually blind, deaf, unconscious, and unable to feel pain. Although some individuals with anencephaly may be born with a rudimentary brain stem, the lack of a functioning cerebrum permanently rules out the possibility of ever gaining consciousness. Reflex actions such as breathing and responses to sound or touch may occur.
Taken from the NINDS Anencephaly Information Page (http://www.ninds.nih.gov/disorders/anencephaly/anencephaly.htm)
Taken from the NINDS Anencephaly Information Page (http://www.ninds.nih.gov/disorders/anencephaly/anencephaly.htm)
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5 comments:
Oh Tiffany! What a wonderful experience!
I try to imagine what it must feel like to have a baby move inside of me. I'm sure that's a big part of the special bond mothers have with their children. To literally be one physically is something the father never really understands.
movement=YAY!
a blessing to be a mom to have that connection. These moments are yours to cherish
Yay for Emma! May she keep kicking and kicking! That was so fun to hear. Thanks!
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